Teen battling rare disease surprised with matric farewell by her friends

Teen battling rare disease surprised with matric farewell by her friends

A teenager battling a rare condition has had her dreams come true. Her friends surprised her with a matric farewell because she could not attend her own.

PAY ATTENTION: Click “See First” under the “Following” tab to see Briefly.co.za News on your News Feed!

Nadia has long fantasised about dressing up for her matric farewell but has a crippling illness. According to YOU magazine, the Krugersdorp teen was diagnosed with Kearns-Sayre syndrome (KSS). It is a rare neuromuscular and degenerative disorder. There is no known cure and only two people in the country are recorded having the condition.

The 18-year-old has been vocal about her dream and when her medical team heard about it, they asked her friends and family to help out.

Dr Ally, along with the Reach for a Dream foundation, helped her friends organise a night she will never forget.

Nadia's health has worsened over the years. She had an operation last year and has battled to recover since. So this evening of escaping her problems did her the world of good.

Ambulances were hired to transport her to Firebrand in Monte Casino, the venue which was donated for the special evening. Friends and family were present to give her an enjoyable evening.

For more information on Kearns-Sayre syndrome and to follow Nadia’s journey, go to hopewithnadia.org.

READ ALSO: From falling pregnant in matric to achieving dream of becoming nurse

Briefly.co.za previously reported that a Capetonian community pulled together to help a young man. The Grade 12 learner almost did not get to have his matric farewell. However, residents in his community came together to give him the perfect night.

Enjoyed reading our story? Download BRIEFLY's news app on Google Play now and stay up-to-date with major South African news!

Source: Briefly.co.za

Mailfire view pixel